To Those That Can Make A Difference:
Serious consideration must be brought upon any our State of Georgia which currently spends 85% of its current Long Term Care budget to house its elderly and disabled populations in nursing home institutions. 90% of individuals in nursing homes would if they could, live abroad in the community supported by services which would aid in activities of daily living. However in many states including our own, beauacracy would rather spend 30+,000 dollars a year plus an individuals SSI SSDI money, to house one individual in a single instituitional setting when specific individual care could be afforded in the community at 1/3 the cost.
Alternative methods to the current medical model must be pursued to truly come to terms with the dilemma of Long Term Care here in the State of Ga. Not only are institutions not economical but they are unsoulful, degrading to the human spirit, and defeating to human pride, passion.
Many institutions let not any of their patrons leave the confines of the inner halls musk with dank smells, for fear of a few wandering off. My own friends who live in nursing homes do not even have choice to get up everyday or be included in any real association, relationship beyond the institution itself. Staff in nursing homes are regularly assisgned to look over some 20 to 30 patients at a time, and rely on most not getting up to pull off their schedules.
These conditions exist right now this moment. Every 3 minutes as we speak another dies alone tucked away abandoned by heartless circumstance and cruel legislation. This is the reason advocates nationwide push forward in whichever way we can to save those who will be next, who will not have the fortune of family to help transition them through tragedy, or the mobility to do it themselves. The numbers increase even now.
We as members of ADAPT are here seeking resolution, compassion for circumstance beyond fate which occurs regardless wealth race or gender. 25% of the persons going into nursing institutions now in our state, are young individuals with disabilites who have no alternate course, no support network, but are in no harm of dying intially from their injuries.
We must empower the communitty of individuals with disabilities, allow for choices and input, so that in empowering and enabling the independent living philosophy, there will be those who like me will roll forward from tragedy and live productive and fruitful lives, benefitting both individuals and the state.
People I know are dying even now from injuries sustained from living in cruel instititions neglected and overlooked. Floyd Burns, A guy I met a year ago, died 3 weeks ago from bed sores and complications. He was 43 years old, the same level injury as me and only 5 years into his accident.
I am not here today to talk about money that will be lost by big profit corporate providers, or votes lost through campaign supports. We are speaking of real flesh and blood people, who feel, hurt, want and need just like every American guaranteed civil rights by birth. If you want to know what we need ask us. Not some commission of authority or some Doctor of learning, but the all individiuals experiencing, adapting, and knowing disability day to day, moment to moment, living the reality of it.
The money we spend supporting instituitions and home health agencies can be better spent in waiver programs which would support and enable the independent living philosophy. Currently Pennsylvania, Kansas, Colorado and several other Northern states have statewide waiver programs implemented and research studies already documented as to the common sense thought of self-managed in community care as oppossed to care within institutional settings.
The philosophy of Independent Living must be the heart and soul of any alternative to any medical model or current legislation, if not it will fail. Unless focus is placed on the individual and not the corporation, freedom will not be served. We must give dignity back to individuals who have been shattered beyond all imagination, turning them from an economical burden into a taxpaying workforce.
Many states are far beyond Ga in exploring alternative methods of servicing
both the elderly and disabled communities. Perhaps we should look to them and
not waste much valuable time repeating discussions or meetings that have already
occurred in time. Let us move forward and progress with the new millenium.